Butterfly Children's Hospices

Before and after.....

It’s wonderful to see what a change love makes in the life of a child. We’ve put these before and after shots of Patrick side-by-side to really show that difference.



When he was new here, his eyes were full of fear. His body was rigid. Holding him felt like holding a plank: a terrified plank who had no desire to be in your arms. Now his eyes are full of laughter. He is cheeky and outgoing, confident and sometimes silly. His little body is chubby and cuddly.

Of course Patrick still has cerebral palsy and a whole lot of other scary sounding diagnoses. He still has challenges and hard days ahead. And we still don’t know how some of those big scary words are going to play out in his actual day-to-day life. But most days, we don’t dwell on those scary words. We prefer to focus on Patrick’s status as a beautiful, beloved boy. Of course it’s important that Patrick gets the right medication, therapy and nutrition, but feeling special and knowing he is loved is equally important.

We understand that love is not a fairy-tale potion which will make all of Patrick’s challenges evaporate overnight. (Gosh, we wish it was that easy!) But just look at the amazing changes in this one little boy. It’s pretty clear that love has powerful magic.
 

Rest now darling girl...

Jennifer has been with us at NJBH since we opened. She has grown up and learnt new things, and we have loved her more and more each day. Her pictures all show a gorgeous, chubby little girl with bright eyes and think black hair. You wouldn’t know from those pictures how truly sick she was. But beyond her chubby cheeks and cute pigtails was a little girl with incredible courage, who was battling serious disease.

We couldn’t save Jennifer’s life, but there was something special we could do for her. We could give her love for as long as she was with us. We are glad to say that we succeeded in giving Jennifer a happy life. She was deeply loved, and her time was full of beauty. Her childhood was short, but her days with us were precious. When we met Jennifer, she looked miserable. She was restless and difficult, hard to comfort and hard to communicate with. Her ayis were amazing – they loved her patiently, even when it seemed impossible that she could ever love them back. Their love was rewarded as Jennifer came out of her shell and found her way back to happiness.

We are thankful Jennifer had such happy days here at Butterfly Home. We know she is free now, and carries with her the love of her Butterfly family. Please remember her ayis over the coming weeks and months. There is a cost to loving a child who is dying, and these brave women understood that, and loved anyway. Now they miss their special girl terribly and are seriously grieving. Their hearts are weeping today, but because of their courage, Jennifer lived a cherished life.

Read more about Jennifer on our blog

Opportunities to work with BCH

Join us at a really exciting time of growth!  We are taking applications for the following vacancies -:

Nurses (China)

Therapists (China)

Trustee/treasurer (worldwide)

Bi-lingual Documentary - inside BCH

 

 

 

 

 

 

 

 

 

 

Take a look at this two-part documentary created by Tianjin TV who filmed at the Changsha Butterfly Home over a period of almost a year. 

It's a  very moving insight into the work with some wonderful glimpses into the lives of the Butterfly children and their carers.

A Pearl from Ashes: Order Julie Mallinson's book - all proceeds to BCH! 

August Update!

28 children in cots in our Homes
Cared for 135 children to date age from 1 day to 10 years
68 received loving palliative/end of life care
15 had life changing surgery
10 have been adopted 4 more waiting
2 children on long term foster care
Already helped 11 families
 

Urgently Needed!

We have an urgent need for the below;

  • Baby Clothes 0-3 months (especially boys)
  • Premature Babygros
  • Movicol
  • Preemie Baby Nappies/Diapers
  • Multi Vitamin Drops for Babies and Children

See our current needs list

Thank you for all your support!

Take an inside look at the Butterfly Home!

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