Butterfly Children's Hospices
What Palliative care is about
Palliative care to us at BCH is not all about death. It's about LIFE!
One day, many of our children will die. That day will come too soon and our hearts will be broken. But until that day - our children are alive. Wonderfully, beautifully, miraculously alive. Every day is a precious gift - a chance to laugh, to hug, to tickle and to celebrate. It's another wonderful day when we can get to know our kids: uncover a shy child's hidden talents, give the born entertainers a chance to take centre stage, run crazy across the playground with the ones who love the feel of the wind in their hair. We want these days of living to be filled with golden moments and overflowing with love.
Our Homes are bright and cheerful, and you will hear peals of laughter coming from the play rooms. Lesley, our dear friend who recently accompanied Jack on his Hong Kong surgery trip, had this to say: "When I first planned my visit to Butterfly, I imagined it would be a sad place with so many poorly children… the reality was quite the opposite! The staff are so dedicated and give so much love. It is a wonderfully warm and happy place to be and the children are a delight!"
Opportunities to work with BCH
Join us at a really exciting time of growth! We are taking applications for the following vacancies -:
International Children’s Palliative Care Network Conference
This month Lyn attended and spoke on the work of BCH at the ICPCN’s very first conference in Mumbai, India which was held at the Tate Memorial Centre. There was a fantastic line-up of world renowned speakers for the conference and workshops, including the founder of the first UK children’s hospice (Helen House) Sister Frances Dominica. Other top specialists in the field gave great insight into several important subjects such as palliative care for neonates, ethical issues and how to be advocates for children’s palliative care.
This location was intentionally chosen in order to bring experts within the field into India to provide opportunities for the transfer of knowledge to many health and allied professionals who are unlikely to have the resources to attend similar conferences held in other parts of the world. It certainly was a great international conference promoting networking and collaboration between programmes, organisations and countries as well as achieving its aim to make the conference an educational, rich and exotic Indian cultural experience for the delegates.
Lyn says, "I learned so much – it was easily the best conference I have ever participated in. The three days were ‘full on’, with interesting speakers, good content to presentations and plenty of time for questions and discussion of issues as well as advice on practical application. Networking was easy in a relaxed environment eating yummy spicy Indian dishes and drinking chai.
There was a great deal of interest and encouragement for the work of our charity and I am hopeful for more concrete assistance in the future."
Barbara Gelb CEO of Help the Hospices thanking all the lovely Indian volunteers at the end of the conference and after announcing the ICPCN conference declaration against euthanasia for children. Read more about the declaration here http://www.icpcn.org/icpcn-mumbai-declaration-2014/ Visit the ICPCN’s website to find out more about their fantastic work www.ICPCN.org
Bi-lingual Documentary - inside BCH
Take a look at this two-part documentary created by Tianjin TV who filmed at the Changsha Butterfly Home over a period of almost a year.
It's a very moving insight into the work with some wonderful glimpses into the lives of the Butterfly children and their carers.
A Pearl from Ashes: Order Julie Mallinson's book - all proceeds to BCH!
26 children in cots in our Homes
Cared for 104 children to date age from 1 day to 10 years
53 received loving palliative/end of life care
13 had life changing surgery
8 have been adopted 4 more waiting
3 children on long term foster care
Already helped 10 families
We have an urgent need for the below;
- Multivitamin drops for babies and children
- Childrens Safety Locks for drawers
Thank you for all your support!